A message from Esha’s Mother
My name is Kavitha and I am Esha’s mother. Most of you are probably already aware and have had a glimpse into Esha’s journey thus far. I felt that now was the time I introduce myself, express our gratitude as a family and most importantly, share what life has truly been like for Esha and our family since her diagnosis.
On Thursday 13th May, our daughter Esha was diagnosed with a very rare form of Acute Myeloid Leukaemia. From that very moment, our world came crashing down. We were in complete shock. Since, we have had to endure an indescribable feeling of pain and despair that has been utterly soul shattering.
When we were first told of her diagnosis, so many questions were running through my head. How could this possibly be happening to our precious baby? Esha is only 4 years old, why her? What could cause such a drastic transformation in her health?
Esha was immediately rushed to Great Ormond St Hospital where she was admitted into the ‘Lion Ward’. Esha was urgently seen by a team of specialist haematologists and oncologists. The former diagnose and clinically manage disorders of the blood and bone marrow.
They began to explain the complex nature of her cancer (AML), an extremely rare form especially in children. A young child’s chances of survival with AML are much slimmer than those with ALL where success rates are much higher post treatment.
We did not have time to both mentally and emotionally process the information relayed by doctors. Our poor little baby spent the next 24 hours having 20+ attempts of drawing blood from the veins in her inner arms, back of her hands and tops of her feet! Her blood was simply too sticky due to the cancer to get a good enough sample for testing.
Naturally, Esha was absolutely traumatised by this. We felt completely helpless with no way to protect our child from this suffering that was only going to become a lot worse as time progressed.
Her bravery and courageousness throughout this journey has been indescribable. I have witnessed adults go through cycles of chemotherapy, but to witness a 4-year old child fight through the suffering every day has been a true inspiration to us all. Esha fights every battle with so much grace. As parents we are proud of her ability to display courage, bravery and strength throughout this journey. Despite the obstacles that she faces, she still finds the energy to thank the nurses, doctors and staff each time they walk into her room.